Is there a “silver bullet” for stroke recovery?

Is there a “silver bullet” for stroke recovery?   The short answer is a resounding, NO!  I cannot believe how many “scams” are out there!  Everyone wants to make a quick buck but nobody is willing to put their money where their mouth is and perform the studies necessary to back up their claims.  When you make the emphatic claim that your therapy, drug, medical procedure, product, etc will cure or reverse the effects of stroke you better damn sight be ready to prove it!

And I do not mean that you have a video of it helping one or two stroke survivors or a biased report written by the person making the claim.  I am saying that you better have data, with a sufficient sampling size, and with positive results to prove that your claim does what it is supposed to and for ALL stroke survivors!

Let me make this perfectly clear, there is NO silver bullet for stroke recovery!  All the claims you might hear of and those websites of testimonials from stroke survivors are nice but definitely not adequate for you to be spending your hard earned money on.

The ONLY thing I know of that should help with stroke recovery is the “tried and proven” stroke rehabilitation of physical, occupational and speech-language therapy and lots of it!  You do NOT need to physically go to therapy, either.  There are lots of exercises you can do at home and by yourself.

So, the bottom line is, no matter how appealing the stroke recovery sounds, please save your money, stroke recovery has no “silver bullet!”

Moving Again!

What does it mean to endorse something? Well, the first thing for me is to believe in what you are endorsing. Believing in the product, or in this case a piece of equipment, is absolutely essential for an endorsement. Especially in this case, I am endorsing something to my fellow stroke survivor brothers and sisters.

What am I endorsing? It is called the PMTD (Physical Movement Therapy Device). It is a passive therapeutic movement device for wheelchair users. All you do is move your wheelchair up to the pedals and handle bars, strap your feet on (and hands on for stroke survivors with quadriplegia) and turn the machine on. Your four limbs are physically moved for you. There is a control box, too, for setting the speed and time. Turn it on and away you go!

PMTD™ has made a huge impact on the lives of thousands of people with disabilities. Benefits from using the PMTD™ include:

Increase of:
• Endurance
• Weight Control
• Muscle Tone
• Pain Control
• Circulation
• Range of Motion
• Organ Cleansing
• Sleep Quality

Decrease of:
• Spasticity
• Pressure Sores
• Contractures
• Stress
• Depression
• Swelling
• Needed Pain Medication
• Secondary Diseases

How cool is that? Stroke survivors, are you hemiplegic or quadriplegic? Stroke survivors, are you in a wheelchair and do not feel like exercising? Do you have problems with swelling, spasticity or skin breakdown? Check out the table. Read what the PMTD will do for you! The best part is you just move your wheelchair up to it, strap on and then take off. It takes less than two minute to setup. How do I know? Because I have one and I love it!

Over the next year, I will periodically be writing articles for our newsletter so I can keep you up-to-date on my feedback and progress. I should mention that I am currently mostly bedridden. I developed a wound on my lower groin last summer. It has been quite large at times, measuring over ½” wide by almost 1” deep.

Also, I developed Type II diabetes about five years ago. My blood sugar averages at least at 150 every day. If you know anything about diabetes, then you know that it is a progressive disease, which can, with ample time, often lead to death. That is why managing your diet and frequent exercising is extremely important! On top of this, in case you do not know, I am quadriplegic. I have not been able to move my body since my stroke in June of 1994.

Needless to say, I am very excited about what the PMTD can do to help my body. It will definitely improve my blood circulation, which will hopefully help heal my wound. It should also reduce my blood sugar and increase my muscle tone. The insulin, in my body, will absorb into the muscles, which will reduce my blood sugar and A1C. I should disclose, however, that I am still unable to get out of bed and use the PMTD on a daily basis. My goal is to use it, at least three days per week, for 30 minutes per day.

I can report, though, that I have already used the PMTD, at a very low speed, several times. I have the timer set for 30 minutes. I present as having quadriplegia but I have complete sensation and can feel every inch of my body. It is absolutely fantastic to feel my limbs move again. I can feel the blood surging throughout my whole body. It feels like my blood is buzzing. It is wonderful!

Check out http://www.strokenetwork.org/sponsors/pmtd.htm to see what this device looks like. You should also watch the video to see it in action.

What is a stroke?

I was browsing the web today and came upon a stem cell website.  I had my stroke over 14 years ago and thought that I understood how a stroke happened pretty clearly but boy did things become clearer today!  I read what had to be the very best explanation of stroke I have ever read.  There were an adequate supply of “technical” terms to make most health professionals happy, too.

Stroke is explained on almost every website that has content about stroke.  I have always felt that most of these explanations always lacked a practical explanation that left the reader with a true understanding of what a stroke truly is.  We all know that a stroke happens when the flow of oxygen is prevented from going to the brain.  Stroke  involves much more than that though.

I was always confused between the terms, thrombosis and ischemic.  To me an ischemic stroke meant that it was a clot; ischemic meaning a clot caused the stroke.  This is true and false, both.  It is true that ischemic means that a clot caused the stroke but actually the word, thrombosis, is the correct medical term for clot.  So, technically, a thrombosis causes an ischemic stroke.

You learn something everyday!  Hey, what do I know, anyway?  I had a brainstem stroke!  Go to http://www.xcell-center.com/treatments/diseases-treated/stroke.aspx for this excellent explanation about stroke.

What is your knowledge about stroke?

What is your knowledge about stroke?  If you are reading my blog then you should have some interest, even a little, about stroke.  I wrote a little 10 question test to see what you know.  The test was not developed to purposely make you feel stupid.  My objective was to show you how compelling the facts about stroke are.

My hope is that you will find this information compelling, too and spread some of the facts around to your friends and they will pass on this information to their friends and so on and so on.

Am I being naïve?  Will some of you do this?  I am very passionate about spreading awareness about stroke.  The Stroke Knowledge Test is my benign and unobtrusive way of getting people interested in the facts about stroke.

If you have been to our website about stroke education and did a good job of reading the content (hint -especially, the web page about stroke statistics) I have no doubt you will do well.  Please take this test.  It will only take a minute of your time.  Let me know how well you did!  No cheating!

Good news for Stroke Bleeds

There is good news for people having hemmoraghic strokes.  The clot busting drug, tPa, which was previously reserved for people having ischemic (blood clot) strokes, might become available for those having a hemmoraghic stroke.  Research at Johns Hopkins University School of Medicine is currently being conducted, with good results, on people that have “bleeds.” The amount of tPa is reduced and controlled to a greater degree compared to the amount of tPa given to someone having an ischemic stroke.  The affects of the stroke took several days to resolve itself.  Some of the stroke survivors participating in the study actually returned to work.  The small study is being expanded to a larger group of 500 people.  This is DEFINITELY exciting news!  I think tPa is a wonderful drug and has made its mark on massive stroke.

The aftermath of my stroke

Now, hopefully, you know what having a stroke is REALLY like.  It is the worst experience in your life.  I cannot empathize enough how frightening it is what you go through.   Your lifestyle is totally changed forever; in a flash your family is devastated!   If you do not have long-term disability insurance your family is immediately thrown into financial chaos.  Your children no longer have a normal child life.  Forget about having fun family events.  Annual vacations, spontaneous things like playing games with your kids, attending ball games and going out with the family for fast food on Friday nights, etc, will stop.  All enjoyable family events will immediately be forever cancelled.  Forget about things like going to the bathroom in private.  You lose every shred of humility you ever had.  There are so many more nightmares to talk about.  Most of what I should warn you about is too personal and private!  You REALLY do not want to know.

My wife went through it ALL with me.  My company flew her to France and put her in my hotel for over two weeks.  She would visit me in the hospital everyday getting there around 8 am every morning and staying in the hospital with me each day until after 8 pm each night.  Support is absolutely essential after a loved one has a stroke.

Something else I should tell you is that stroke does not just affect you.  Besides your spouse and kids your extended family is also affected; your brothers, sisters, nieces, nephews, mothers, fathers, in-laws and their families all will be affected.  Oh, and you think you have good friends?  At least 99% of stroke survivors have told me that their friends have stopped coming around.  Many will visit you right after the stroke, while you are in the hospital, but be prepared to lose every friend from coming around.  Your friends will not suddenly stop liking you but chances are VERY good that not one will EVER hang out with you again!  It is amazing how quickly your friends will ALL disappear.

Be prepared for an uncontrollable emotional rollercoaster, too.  Your ability to control laughter or crying at inappropriate times will be lost.  Seriously, it is called, emotional lability.   Emotional lability is totally frustrating and can be very embarrassing.  You will learn to hate the powerful lack of control.  Also, severe depression is common and may creep in when you least need this burden.    Depression for stroke survivors can be very dark and can rule every aspect of your life.  You cannot realize how painful depression is unless you have experienced it.

Bottom line is that having a stroke is permanent.  You cannot reverse the effects of stroke.  You must learn to live with the devastating disabilities that it causes.  I apologize for such a lengthy blog but this was my reality.  Millions of people go through similar nightmares.  According to the American Stroke Association, stroke happens to about 780,000 people per year.  About 5,800,000 stroke survivors are alive today.

Stroke cannot be prevented but you can prevent the risk of it.  High blood pressure is the most obvious sign.  Eating a diet that is high in salt can cause the high blood pressure.  Lack of exercise and leading a dormant lifestyle can lead to being overweight and having high blood pressure, too.  Cigarette smoking and excessive drinking of alcohol also increases the risk of stroke.

Go to http://www.StrokeEducation.info/ for information about stroke.  New stroke caregivers should download and print our Stroke Caregivers Handbook at http://www.strokecaregiver.org/handbook.htm.

Stroke through Post-stroke

After the nurses assembled around me they pinned me down and pulled out a needle.  The shot did not fully knock me out but it took the fight out of me.  I remember several people rolling me down the hall.  They rolled me into another room and transferred me to a hospital bed.  People were all around me working franticly.  I remember someone cutting my jeans off with scissors.  Someone else was hooking up my air supply and somebody injected me with something, which I later learned was Heparin, right below my belly button.  A middle age doctor started talking to me in English with a heavy French accent.  Every five minutes he would ask me to touch my nose with either hand.  The first few times I could do it with no problem.  Each time thereafter my arms grew heavier and heavier until I could no longer move.  I was half asleep and very confused.  I did not ever pass out and was ALWAYS cognizant of EVERYTHING going on around me.  I had a breathing tube down my throat and another tube that went into my lungs to remove the fluids that were quickly building up.  Someone then threaded a tube down my nose for feeding purposes.  Also, my hand was pricked and an IV line was started.   I HAD to be in a unit equivalent to the American ICU.  People were swarming around me rattling off French and did not leave until mid-afternoon when I finally stabilized.

I was living a real life nightmare.  I could not talk, I thought only because I had a breathing tube down my throat (I did not find out that I had permanent speech loss for three weeks), nor move.    I could see and hear and understand everything going on around me.  The only movement that I had was eye movement.  Later, I would learn that this is called being locked-in.  I could understand bits and pieces of what was being said about me.  I had been in France several times and this trip had just started its third month.  I could understand the French language much better than my speaking skills.  What I picked up was scaring me to death.

Immediately after my stroke I could not speak.  While I was in the hospital in France, I had a tube down my throat because my lungs were constantly filling with fluid.  I thought that this was obviously the reason that I could not talk.  Also, I knew that there was a small diameter tube threaded into my nostril, through my throat and into my stomach.  I was awake when they put the feeding tube down my nose and I was angry because it was so uncomfortable.  The doctors put a breathing tube down my throat, too.  I could imagine how I must have looked and I did not like it one bit!  I was ticked off because, in my mind, all of these tubes were unnecessary.  In my mind, I could still eat and breathe on my own.  I was angry that they had forced me to submit while they did all of these things to me without my permission.  Let me tell you the story of why the breathing tube was removed.

On the second day after my stroke, I was woken up early when a gurney was wheeled into my room.  I had no idea of what was going on.  The attendants seemed to know what they were doing and occasionally muttered something in French to each other.  Keep in mind that I was cognizant of EVERYTHING going on but did not have the ability to move anything below my nose.

The attendants transferred me to the gurney, made sure I was covered with a blanket and they guided me out of the room.  They push me out of the room and made a sharp right turn past the nurse’s station.  We went a few more feet and made a sharp left.  We rode down a long corridor and then I lost my bearings.  It is not easy to lay flat on your back on a fast moving gurney and remember where you are going.  Your only point of reference is the ceiling.  I could not even turn my head.  I just remember the halls being poorly lit with individual light bulbs.  The hospital had the feel of being something out of WWII.

We made a couple more sharp turns and then went into a narrow elevator.  We obviously were going down because I heard the whine of the elevator and felt the downward movement as we dropped several floors.  We I could hear the doors open and suddenly I was moving again.  Several dozen ceiling panels passed, as we must have moved straight forward a short distance and then we abruptly stopped.  I heard a male and female voice speaking softly in French and then my gurney was pushed into a small dark room that had a bright light coming from the center.

I was very confused about what was going on.  I had no idea of why I was moved from my room or where we were now.  The only voices that I heard were speaking French and nobody had even tried to tell me what was going on.  The next thing I know I was being transferred to a narrow bed.  Again, I felt myself being covered up with a blanket.  The next thing I saw and felt was a plastic mask being placed over my mouth and nose.  The room went completely dark in seconds and I remembered nothing of what happened next.

I woke up back in my room still on the gurney.  The gurney was positioned parallel with my bed, as if they were about to transfer me back to bed but had suddenly been called away.  I opened my eyes and looked around the room.  The windows must have been open.  A hot breeze was coming across the room.  The hospital had no air conditioning.  In this hospital that meant that every window was ALWAYS open.

I was not in pain but I could feel something hard on my throat and could feel gauze on my neck.  Had I been operated on… without me knowing about it?  Yes!  The bastards had given me a tracheotomy and did not even have the decency to forewarn me!  I was immediately livid with anger and frustration.  I was in disbelief.   What kinds of people were these?  They just gave me a tracheotomy and did not say one word to me about it?  I was also upset that they would leave someone in my condition unattended?  It was almost as if they did not care how I felt.  It made me feel violated!  I had been warned months ago about the French disdain for Americans.  Was this what I had been experiencing all along at this hospital?  My French friends at work were terrific and were generally warm.  The French people at the hospital were cold and unfriendly.  What was next?  I was soon to find out.

Suddenly, a figure walked in and I immediately noticed his black suit and white collar.  I almost fell off of the gurney, figuratively, of course!  My immediate thought was that he was there to administer my last rites.  I could not believe that this was happening to me!  I just knew that I had just had a stroke and was in VERY bad shape; I must be getting ready to die!  To be continued ….

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